Trying to EAT?!?
2021-06-20
We are now into the hardest phase of Noah’s Treatment. He has 4-8 pills to take twice a day. The tears and pleading each time we sit down to takeContinue Reading
Fluff Fluff
2021-06-18
6/17/2021 I gave Noah his meds…a nice bath….and then tucked him into bed. He was asleep by 8:30pm ….snuggling his bear Fluff Fluff! Such a roller coaster of emotions watchingContinue Reading
Noah woke up about 5pm
2021-06-17
Noah woke up about 5pm and tried to go in his room to play Xbox. He got in there and said he is nauseous and tired. I took him backContinue Reading
Woke up long enough to eat.
2021-06-17
Noah asked me to make spaghetti and so I did…he ate a nice portion of it. He has been laying on the sofa since he woke up because he doesn’tContinue Reading
Moody Boy
2021-06-16
6/16/2021 The last couple of days, Noah’s mood has been a roller coaster. I know the steroids could usually cause that to happen. He did okay a bit on hisContinue Reading
Noah’s counts were great!
2021-06-08
Noah’s counts were great! The steroid is the big factor on why he isn’t feeling his best these days. His Creatinine levels were high, so they will treat him withContinue Reading
Noah was in tears
2021-06-04
Noah was in tears from his nausea this evening. I gave him his anti-nausea meds and laid him down in bed. I rubbed the arches of his feet with myContinue Reading
Stay strong and never give up!
2021-06-03
Matthew SantiagoMy dad saw a sign in front of your home today and stopped by. He had a brief conversation with your dad and told him about me and theContinue Reading
Noah is doing good today.
2021-06-03
6/3/2021 Noah is doing good today. His appetite it picking up and He is only a tiny bit nauseous. He is still just laying around and resting. There’s a niceContinue Reading
Noah fell asleep early tonight.
2021-06-02
Noah fell asleep early tonight. He was complaining of side pain tonight. Not bad enough that we needed to call in or be seen, but just a bit uncomfortable heContinue Reading
