I know I do not get to post very often. It is not because I have nothing to say, rather I spend so much time trying to keep up with my wife Gina. I do not want to miss any post, video, photo or event so I spend a ton of time getting videos from Gina and converting them to a format that anyone can view. I also spend quite a bit of time resizing photos and cutting them to fit in the weekly slide shows and inserting photos into frames for the Journal posts like this one. Gina does such a great job of documenting so very much of Noah’s journey. I take care of the postings and sales of Noah’s support items like the Car Magnets, Wristbands and his “Super Noah” T-shirts.
I have to say that NOAH is the real hero for us. His strength, spirit and his determination is beyond words. HE IS OUR STRENGTH. No matter how bad our hearts ache for him, no matter the tears we shed for him (out of his view of course) he fights on! As a parent I can say this is your worst nightmare and if I could have one wish it would be that NEVER AGAIN would any parent have to go down this path. It takes every bit of our courage and determination to help him battle this horrible disease. But please please never forget, it is THE AMAZING NOAH who is our super hero!