Noah is feeling better today…still a bit uncomfortable but much better and more active!! He is ready for clinic to get his counts checked!!Continue Reading

We’re looking forward to clinic tomorrow. Noah still has pain all throughout his body. He has been laying on the sofa all day. He will get his counts checked tomorrowContinue Reading

Hoping he sleeps through the night. Two more days of dexamethasone but tonight he took melatonin to help with the restlessness and insomnia. Every time he takes steroids he getsContinue Reading

Noah woke up feeling ok, but has no appetite. Today was the first day in a long time, he did not want anything to eat when he woke up! AsContinue Reading

Today is Wednesday September 29th.  This is the first day of maintenance for our Super Hero Noah.  He begins what is called maintenance.  This is the first day of (6)Continue Reading

Noah’s 1st cycle of maintenance begins today as long as his counts are good this morning in clinic. Each cycle of maintenance is 12 weeks long. Today he will haveContinue Reading

Noah’s working double time today getting school work submitted for the week. He starts his first cycle of maintenance tomorrow morning. He will be getting a lumbar puncture with ITContinue Reading

Noah’s appetite has been raging which is a good thing. But it’s not even steroid week yet! If you know, you know lol. When Noah takes his steroids he isContinue Reading